If your loved one with dementia has been upset with you, frustrated with you, or has told you flat out that they are unhappy with how you are handling things, there is something I want you to hear right away. You are not doing this wrong. And you are not a bad Careblazer.
I know how easy it is to believe otherwise. Big-hearted, loving caregivers want to do the very best they can. So when the person you are caring for is sad, angry, or disappointed in you, it is natural to take that as a scorecard. To decide that their unhappiness is proof you have failed them somehow.
There is nothing further from the truth.
I want to talk about something that almost nobody says out loud in dementia caregiving: trying to keep your loved one happy all of the time is not actually the goal. It sounds like the goal. It sounds beautiful. But when you chase it, it quietly costs you three things you cannot afford to lose.
What “Keeping Them Happy” Actually Looks Like Day to Day
Before we get into why this backfires, it helps to name what this looks like in a real house on a real Tuesday.
It looks like:
- Saying yes to something you know is not safe because saying no means a hard afternoon
- Handing back the car keys, the checkbook, or the credit card to end an argument
- Dropping what you need the moment they want something, no matter how depleted you are
- Rushing to redirect them the second they get sad, because their sadness feels unbearable to sit in
- Explaining, reasoning, and listing all the reasons they should feel better about the situation they are in
None of that comes from a bad place. All of it comes from love. That is exactly what makes it so hard to see clearly.
The First Cost: Some Things That Would Make Them Happy Are Not Safe
This is the most obvious one, and it is still the one that hurts.
In dementia, many people, and eventually all people, become unsafe doing certain activities. Take driving. In the early, mild stages, could someone technically still be okay to drive? Sure. That is a very personal decision. But at some point, every single person with dementia will be unsafe to drive. Their brain will no longer be able to manage all the steps that driving requires.
So if your loved one really, really wants to drive and they are no longer safe to do it, and you are the person standing between them and those keys, guess what? They are not going to be happy with you.
Same with finances. If your loved one wants full control over the checkbook and the credit cards, but they are falling for scams, giving out their Social Security number, and handing people blank checks, wouldn’t you want to step in and stop that? Of course you would. You are doing it in their best interest. And it is still not going to make them happy, because in their mind they can absolutely still do the thing. They still want to do the thing.
I am not talking here about how to have those conversations. There are plenty of videos on the channel about what to say when someone wants to drive and is no longer safe, and what to do when you have to take over the finances. This is about the mindset underneath all of it.
When your loved one is not happy with you, it does not mean you are doing something wrong. Sometimes it means you are doing the very best you can to keep them safe.
If saying no is the part that guts you every time, I wrote more about that here: how to say no to your loved one with dementia without the guilt.
The Second Cost: It Comes at an Enormous Expense to You
Here is what gets left out of the “keep them happy” math. You.
We talk a lot about giving 100 percent. But your 100 percent looks different depending on the day. What you are able to do after a full night of sleep is completely different from what you are able to do after three hours of sleep because your loved one was up wandering at 2 a.m.
So your own capacity has to be part of your dementia decision making. It is not always only about the person with dementia.
Let’s say you are still working. You come home, and your loved one wants to go on a car ride right this second. Some days, that is genuinely fine. Hop in the car, honey, let’s go. And some days you are starving. You are exhausted. You need to use the restroom. You are not feeling well.
If we ignore our own signals 100 percent of the time and simply do the thing our loved one wants every single time, we are pouring gasoline on burnout, exhaustion, and resentment. And those three things make caregiving harder in the long run, not easier. Not just for you. For them too.
You are absolutely allowed to consider yourself. We cannot dismiss our own humanness and our own needs indefinitely.
Will you override yourself sometimes? Yes. Honestly, you will probably do it a lot of the time. That is the nature of this. But some of the time, it is okay to choose yourself.
The Third Cost: You Miss the Most Human Moments You Could Have Together
This is the one almost nobody sees coming, and I think it is the most common of the three.
When we work to keep our loved one happy all the time, we sometimes remove a genuinely human interaction we could have had with them. A bonding moment. A loving moment. The kind of moment that makes the relationship stronger, not smoother.
Let me show you what I mean.
What You Already Do for a Friend Who Is Hurting
Think about a friend of yours who went through something hard. Maybe they lost a spouse. Maybe their partner left. Maybe they got fired.
When they came to you sad, upset, crying, heartbroken, what did you do?
You sat there with them. You listened. You let them know you were there. You said things like, “This must be so hard.” And, “I am so sorry you are going through this.”
You did not say, “Oh, it will all work out, don’t worry about it, let’s go get a drink.” You did not hear their pain and say, “Oh look, our favorite show is on, let’s watch it.”
You already know how to do this. You have done it your whole life.
What We Do Instead When It Is Dementia
But when the person who is unhappy has dementia, something shifts.
We try to redirect immediately, because we want them off whatever is upsetting them. We change the subject, because we do not want them to be sad. Or we reach for logic and start listing all the reasons they should not feel this way.
They say, “I want to go home. I don’t want to be here.” And we say, “Well, this place is great for you, they have activities, the people here like you, there are games.”
What we are really doing is trying to convince them to be happy about a situation they are not happy about.
In other words, we go hunting for the dementia response when what was needed the whole time was the human response.
The Human Response, and What It Sounds Like
In so many caregiving situations, if you take the dementia part out of it for a moment and simply respond to a person you love who is having a hard time, you land in exactly the right place.
It sounds like this:
- “This must be so hard.”
- “I am so sorry you are going through this.”
- “That sounds really scary.”
Then you stay. You do not fix. You do not explain. You do not redirect. You sit with them the way you would sit with anyone you love.
Two things happen when you do that. Your relationship with your loved one gets stronger, because they felt met instead of managed. And an enormous weight comes off you, because you are no longer responsible for producing some magical dementia response you were never taught.
Does that make sense, Careblazer?
Sadness Is Not Evidence That Something Went Wrong
Here is the piece I most want to stay with you.
People with dementia are people. They are still human. They are going to have the full range of human emotions, and dementia does not take that away.
They are allowed to be frustrated. Sad. Scared. Grieving. Angry about a life that looks nothing like the one they planned.
When those feelings show up, it does not mean anything bad about you. It does not mean you missed a step or picked the wrong strategy. It means they are a human being having a human response to something genuinely hard.
We do not have to turn their sadness into a verdict on our caregiving.
What to Aim For Instead of Constant Happiness
If happiness all the time is the wrong target, what is the right one?
Aim for safety, even when safety is unpopular. Aim for connection, which is available in sad moments as much as happy ones, and is often deeper in the sad ones. Aim for a version of this that you can actually sustain, because you are going to be doing this for a long time and you need to still be standing.
Joy still matters. When you can bring your loved one joy, do it, absolutely. Just stop using their moment-to-moment happiness as the measure of whether you are doing this well. It is a goal that sounds pretty. It sounds like exactly what a great Careblazer should want. But when you are the one actually living it day to day, it does not hold up.
Trying to make your loved one happy all of the time means jeopardizing their safety, ignoring your own needs, and missing the most human moments available to you.
If This Is Weighing on You, You Do Not Have to Carry It Alone
If you have been reading this and recognizing yourself, if you have been quietly measuring your worth as a caregiver by whether the person you love is happy with you today, please be gentle with yourself about that. It came from love. It just was not a fair standard to hold yourself to.
I wrote The Dementia Care Toolkit: Real Help for Challenging Behaviors and Caregiving Overwhelm for exactly these moments. The ones where you are overwhelmed, unsure what to do, and you need something practical you can actually reach for. It is available for pre-order now, and you can pre-order the Dementia Care Toolkit here.
And if what you really want is to talk this through with someone, that is what the Care Collective is for. Inside, we work through exactly these kinds of situations. Not just the mindset, but the actual words. What do I say when they want to go home? How do I hold a boundary about driving without it wrecking the whole day? How do I respect my own needs and still take good care of my loved one? Every week you can bring your real situation to me, to other experts, and to other Careblazers who understand it from the inside. You can learn more here.
Careblazer, I am sending you so much love. I am sorry this is not easier. My goal is that if this journey is not going to be easy, and it is not, at least we stop making it harder than it has to be.
Watch On Youtube
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